Refine
Year of publication
Document Type
- Conference Proceeding (288)
- Article (228)
- Part of a Book (51)
- Book (18)
- Doctoral Thesis (8)
- Report (6)
- Preprint (4)
- Periodical (3)
- Part of Periodical (3)
- Other (2)
Institute
- Forschungszentrum Mikrotechnik (220)
- Forschungszentrum Business Informatics (129)
- Technik | Engineering & Technology (115)
- Wirtschaft (105)
- Department of Computer Science (Ende 2021 aufgelöst; Integration in die übergeordnete OE Technik) (101)
- Forschungszentrum Energie (59)
- Didaktik (mit 31.03.2021 aufgelöst; Integration ins TELL Center) (37)
- Soziales & Gesundheit (28)
- Forschungszentrum Human Centred Technologies (27)
- Josef Ressel Zentrum für Materialbearbeitung (27)
Language
- English (614) (remove)
Has Fulltext
- no (614) (remove)
Keywords
- arrayed waveguide gratings (11)
- Laser ablation (10)
- Y-branch splitter (8)
- photonics (8)
- Optimization (6)
- integrated optics (6)
- Evolution strategy (5)
- MMI splitter (5)
- Mathematical model (5)
- Volatile organic compounds (5)
X-ray micro tomography of three-dimensional embroidered current collectors for lithium-ion batteries
(2016)
This chapter is about school suspension through a social work lens. Young people like Martin require the collective to belong, to be a member of a group, to realise their social needs. This is the basic requirement of human mental and social stability. Suspension stands in opposition because it legitimises social exclusion and disregards the linkage between the individual and collective (Bunge 2003). This chapter advocates for a whole systems approach to tackle social problems and develop sustainable interventions that facilitate young peoples’ needs realisation at school.
Objectives: The MetabQoL 1.0 is the first disease-specific health related quality of life (HrQoL) questionnaire for patients with intoxication-type inherited metabolic disorders. Our aim was to assess the validity and reliability of the MetabQoL 1.0, and to investigate neuropsychiatric burden in our patient population. Methods: Data from 29 patients followed at a single center, aged between 8 and 18 years with the diagnosis of methylmalonic acidemia (MMA), propionic acidemia (PA) or isovaleric acidemia (IVA), and their parents were included. The Pediatric Quality of Life Inventory (PedsQoL) was used to evaluate the validity and reliability of MetabQoL 1.0.
Results: The MetabQoL 1.0 was shown to be valid and reliable (Cronbach's alpha: 0.64–0.9). Fourteen out of the 22 patients (63.6%) formally evaluated had neurological findings. Of note, 17 out of 20 patients (85%) had a psychiatric disorder when evaluated formally by a child and adolescent psychiatrist. The median mental scores of the MetabQoL 1.0 proxy report were significantly higher than those of the self report (p = 0.023). Patients with neonatal-onset disease had higher MetabQoL 1.0 proxy physical (p = 0.008), mental (p = 0.042), total scores (p = 0.022); and self report social (p = 0.007) and total scores (p = 0.043) than those with later onset disease.
Conclusions: This study continues to prove that the MetabQoL 1.0 is an effective tool to measure what matters in intoxication-type inherited metabolic disorders. Our results highlight the importance of clinical assessment complemented by patient reported outcomes which further expands the evaluation toolbox of inherited metabolic diseases.
Ultrafast-laser manufacture of radially emitting optical fiber diffusers for medical applications
(2018)
Towards a strategic management framework for engineering of organizational robustness and resilience
(2020)
Towards a novel infrastructure for conducting high productive cloud-based scientific analytics
(2016)